My name is Shauna Gardino and I am clinical research coordinator at the Oncofertility Consortium. I manage the portfolio of social science studies related to fertility preservation for cancer patients. There are five current social science initiatives that provide a vital perspective of the social implications and considerations associated with oncofertiltiy in the lived world, including:
• An examination of the ethical, legal and religious issues associated with emerging fertility preservation technologies, including issues such justice and access to treatment, consent and disclosure, international perspectives and prospective ethics.
• A willingness to pay assessment spearheaded by the Kellogg School of Economics to understand the economic value of oncofertility technologies
• A shared decision-making study aimed at developing, implementing, evaluating and disseminating a shared decision making model for family, patients and health care providers to use in deciding what to do about fertility issues when a young girl has been diagnosed with cancer
• An examination of how breast cancer patients navigate fertility concerns and treatment options, looking at how doctors and patients discuss the topic of infertility and possible treatment options and identifying facilitators and barriers to this exchange of information
• A quality of life study aiming to assess reproductive concerns and psychosocial functioning in cancer patients and to compare longitudinally the overall psychosocial functioning in cancer patients referred for fertility consultation and cancer patients not referred for fertility consultation.
Additional information related to the social science initiatives can be found on the Oncofertility Website:
I am also currently conducting an independent study on adoption agency attitudes and perspectives on the potential to parent for individuals with a history of cancer. I also assist with administrative duties at the Consortium and will be in charge of the Annual Oncofertility Consortium Conference this September 14-16th in Chicago, IL. The conference is an opportunity for researchers and clinicians to disseminate knowledge and share progress and ideas in the field of oncofertility, and a testament to our growing network and emerging field. Mark your calendars!
Looking forward to sharing this exciting research with all of you!!
Shauna