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Category: Advocate

Successful Soulcycle Event

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, National Physicians Cooperative, Oncofertility
Tags: Advocate, National Physicians Cooperative, Oncofertility
We’re happy to share that National Physicians Cooperative member, Reproductive Medicine Associates of New York, hosted a successful fundraising event this past Sunday at Soulcycle in Manhattan, New York.  This philanthropic class was sold out and money was raised for Susan G. Komen Foundation in…
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Pediatric Oncofertility Research Foundation

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Introductions, Oncofertility, Patient Stories
Tags: Advocate, Introduction, Oncofertility, Personal stories
We are delighted to provide our support to the newly developed Pediatric Oncofertility Research Foundation (PORF).  PORF supports research in the field of fertility preservation for children treated for cancer. The primary goal of the foundation is to allow the choice of future fertility to…
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Stupid Cancer Chicago Meet-up: June 25th

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Cancer, General, Patient Stories
Tags: Advocate, AYA, cancer, Personal stories
UPDATE: NEW VENUE INFORMATION BELOW! The Oncofertility Consortium is pleased to spread the word about an upcoming Stupid Cancer Meet-up with founder and CEO (and a wonderful friend of the Oncofertility Consortium), Matthew Zachary.  Mark your calendars for Wednesday, June 25th – read more below! Wednesday…
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Fertility-Friendly States

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, fertility, General, In the news
Tags: fertility, insurance, publication
Yesterday, the Huffington Post published an article outlining states that are ‘Fertility-Friendly’.  The article, ‘State-By-State ‘Fertility Friendliness’ Ranking Show Wide Range’ was written by Resolve: The National Infertility Association in partnership with EMD Serono Inc., a biotech drug company that makes fertility treatments.  While many…
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Insurance Coverage for Fertility Preservation

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Cancer, Communication, fertility, Fertility Preservation, General, Oncofertility
Tags: Advocate, cancer, Fertility Preservation, insurance, Oncofertility, publication
Chapter 14 of Oncofertility Communication: Sharing Information and Building Relationships across Disciplines addresses an extremely important issue in healthcare, insurance coverage.  The authors, Dr. Laxmi Kondapalli and Alice Crisci, wrote Incorporating Insurance Education into the Fertility Preservation Process to outline strategies that may facilitate access…
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AYA Twitter Chat TODAY 12:30pm CST (#YACancer)

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Cancer, Fertility Preservation, General, Oncofertility, Patient Stories
Tags: Advocate, AYA, cancer, Fertility Preservation, Oncofertility, Personal stories, Robert H. Lurie Comprehensive Cancer Center
Recently, Mashable featured Jenna Benn in a wonderful article: Wedding, Career, Chemo: When Cancer Derails the Millennial Dream.  Jenna Benn is a patient of the Robert H. Lurie Comprehensive Cancer Center at and a wonderful friend and supporter of the Oncofertility Consortium. Due to the…
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2014 World Cancer Day

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Cancer, Education, Fertility Preservation, General, In the news, Research, science
Tags: Advocate, cancer, education, ethics, Fertility Preservation, quality of life
If you’re not already aware, today is World Cancer Day.  World Cancer Day was founded by the Union for International Cancer Control (UICC) to support the goals of the World Cancer Declaration which calls upon government leaders and health policy-makers to significantly reduce the global…
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Oncofertility: Education and the Role of Decision-Making Tools

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Cancer, Education, Fertility Preservation, Oncofertility, Research, science
Tags: cancer, education, Fertility Preservation, Oncofertility, patient navigation
Education materials, whether in print or web-based, have a large role in helping patients feel confident in their medical decision-making.  Continuing with our overview of Oncofertility Communication: Sharing Information and Building Relationships across Disciplines, Chapter 3 focuses on the importance of education, and the role of decision-making…
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Communicating Across Diverse and Differently Literate Audiences

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Cancer, Education, Fertility Preservation, Oncofertility
Tags: Advocate, cancer, education, Fertility Preservation, Oncofertility, publication
We can all remember a time when we have received medical information from our doctor and have walked away with little or no comprehension of what was discussed.  The second chapter in Oncofertility Communication: Sharing Information and Building Relationships Across Disciplines is entitled Communicating Across…
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The Stupid Cancer Show: Perspectives on Life after Cancer

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Cancer, Education, Fertility Preservation, Oncofertility
Tags: Advocate, cancer, fertility, Fertility Preservation, Oncofertility, ovarian tissue cryopreservation, Personal stories, Robert H. Lurie Comprehensive Cancer Center, Stupid Cancer
Here at the Oncofertility Consortium, we’re huge fans – both personally and professionally – of Matthew Zachary, the force behind Stupid Cancer; the nation’s largest support community of young adult survivors of cancer.  Created in 2004 (first as Steps for Living, then transitioning into I’m Too…
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Support The Family Act of 2013!

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Cancer, fertility, Fertility Preservation
Tags: Advocate, Fertility Preservation, infertility, insurance
Imagine that you are diagnosed with cancer at 24.  On top of processing the enormity of your diagnosis at such a young age, you’re shuttled from one appointment to the next, coordinating your treatment plan in the quickest timeframe possible.  Today, treatment discussions are more…
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Support For Fertility Preservation Is Now An AMA Policy!

By: Oncofertility Admin -
Categories: Advocate, Blog, Cancer, Education, Fertility Preservation, Oncofertility
Tags: AMA, Fertility Preservation, infertility, insurance, Oncofertility
Should insurance companies cover the expenses of fertility preservation when a young cancer patient is at risk of losing their fertility as a result of their treatment? This is what members of the Michigan delegation asked the American Medical Association (AMA) to support by lobbying…
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Pregnancy & Cancer Registry

By: Oncofertility Admin -
Categories: Advocate, Blog, Education, Fertility Preservation
Tags: breast cancer, cancer, clinical research, Cooper University Health Care, Fertility Preservation, Oncofertility
Finding out your pregnant can be one of the happiest times in your life. Couple that with a cancer diagnosis and suddenly you’re not only concerned about your health, but that of the new life you are busy growing. Cancer during pregnancy is rare, occurring…
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The Role of Fertility Preservation Patient Navigators in Oncofertility Management

By: Oncofertility Admin -
Categories: Advocate, Blog, Cancer, Fertility Preservation, Oncofertility
Tags: Advocate, cancer, Fertility Preservation, infertility, Kristin Smith, Oncofertility, Oncofertility Medical Practice: Clinical Issues and Implementation, Patient Navigator
As you may have heard us mention a time or two before, the 3rd book in the oncofertility series, Oncofertility Medical Practice: Clinical Issues and Implementation, was just released on Amazon.com and is available for purchase. Besides just letting our readers know that important piece…
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September 30th: Lynn Sage Breast Cancer Town Hall Meeting

By: Oncofertility Admin -
Categories: Advocate, Blog, Cancer, General
Tags: Advocate, cancer, Northwestern University, Robert H. Lurie Comprehensive Cancer Center, The Lynn Sage Breast Cancer Town Hall Meeting
The Northwestern Community (university, hospital, faculty foundation, etc.) is extremely comprehensive, and offers so much in the realm of cancer care. We like to think that we’re a one stop shop for anyone dealing with a cancer diagnosis – taking care of patients’ physical, mental,…
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CNN Health Focuses on Imerman Angels and Cancer Advocacy

By: Oncofertility Admin -
Categories: Advocate, Blog, Cancer
Tags: Advocate, AYA, cancer, CNN, Fertility Preservation, Imerman Angels, infertility, Jonny Imerman, Personal stories
Recently, one of our friends and cancer advocates, Jonny Imerman, was featured on CNN Health, in an article entitled “Pairing ‘Angels’ with Cancer Patients,” showcasing the organization he began 10 years ago, Imerman Angels. Imerman Angels is an organization founded in 2003 that carefully matches and…
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“Life Interrupted,” Shares the Unique Challenges of a Young Adult with Cancer

By: Oncofertility Admin -
Categories: Advocate, Blog, Cancer, Fertility Preservation, Oncofertility
Tags: Advocate, cancer, New York Times, Oncofertility, Personal stories, quality of life, Suleika Jaouad
Suleika Jaouad is a 24-year-old writer from Saratoga Springs, N.Y. Her column, “Life, Interrupted,” appears weekly in the New York Times. Suleika chronicles her experience as a young adult with cancer and the unique challenges she faces such as infertility, psychosocial issues, and survivorship. I…
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The Need for Greater Awareness About Fertility Preservation

By: Oncofertility Admin -
Categories: Advocate, Blog, Cancer, Fertility Preservation, Oncofertility
Tags: cancer, Cancer Today, Fertility Preservation, infertility, Oncofertility, publication, quality of life, teresa k woodruff
Over the last twenty years, advances in fertility preservation techniques have made oncofertility more accessible to women diagnosed with cancer or other fertility impacting diseases. Despite this good news, the academic journal, Cancer, recently reported that between 1993 and 2007, only 4% of women between…
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Navigating Cancer Clinical Trials Laws

By: Oncofertility Admin -
Categories: Advocate, Blog, Cancer
Tags: Advocate, cancer, insurance, legal
We now bring to you a guest blog from the cancer advocacy group Navigating Cancer Survivorship, which provides education and resources to health care professionals, survivors, and caregivers regarding the continuum of cancer survivorship. __________ As previous blog posts have indicated, there are several laws…
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