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Category: Patient Stories

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A Message from RESOLVE: New Hampshire Fertility Advocacy

Author image - Lauren Ataman-Millhouse By: Lauren Ataman-Millhouse -
Categories: Advocate, Blog, Cancer, children, Fertility Preservation, In the news, Patient Stories
RESOLVE New England is actively involved in advocating for insurance legislation in New Hampshire, in partnership with patients, advocates, and providers. The bill, SB 279, would provide group insurance coverage for the diagnosis of infertility, fertility treatment and fertility preservation in New Hampshire.
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Royal College of Nursing Feature

Author image - Lauren Ataman-Millhouse By: Lauren Ataman-Millhouse -
Categories: Advocate, Blog, Cancer, Fertility Preservation, Global Partner, In the news, Oncofertility, Patient Stories
OPEN Member Val Peddie, from the Royal College of Nursing in Aberdeen was recently highlighted in Royal College of Nursing electronic magazine bulletin (see pages 10-11) to discuss fertility preservation and patient experience in Aberdeen. The article highlights Val and all of the work she…
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Governor Rauner to Sign HB 2617- Providing Insurance Coverage for Oncofertility Patients in IL

Author image - Lauren Ataman-Millhouse By: Lauren Ataman-Millhouse -
Categories: Advocate, Blog, Fertility Preservation, In the news, Oncofertility, Patient Stories
On August 27, 2018, Illinois Governor Bruce Rauner will sign in to law HB2617, which will ensure insurance coverage for oncofertility and fertility preservation patients. Illinois will join four other states that have passed similar legislation. This is a huge milestone for the field and on…
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Simplify Cancer Podcast: Your Fertility Options Before Treatment

Author image - Lauren Ataman-Millhouse By: Lauren Ataman-Millhouse -
Categories: Blog, Cancer, Fertility Preservation, In the news, Oncofertility, Patient Stories
Dr. Mahmoud Salama, an active member of the Oncofertility Consortium and OPEN, recently represented the Consortium during a podcast interview where he discussed fertility preservation options for cancer patients. The interview appeared on the Simplify Cancer Podcast, a podcast for cancer patients and survivors that…
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January VGR Now Online

Author image - Lauren Ataman-Millhouse By: Lauren Ataman-Millhouse -
Categories: Blog, Patient Stories, Virtual Grand Rounds
January's VGR Fertility preservation decision-making: Qualitative approaches to understanding patient and provider communication  is now available online. Dr. John Salsman delivered the talk. Click here to watch this talk in its entirety.  Dr. Salsman is an Associate Professor in the Department of Social Sciences and Health Policy at…
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Exciting News from the Alliance for Fertility Preservation

Author image - Lauren Ataman-Millhouse By: Lauren Ataman-Millhouse -
Categories: Advocate, Blog, Fertility Preservation, In the news, Oncofertility, Patient Stories
Below is an exiciting announcement from our partners at the Alliance for Fertility Preservation. New York has become the latest state to endorse insurance coverage for IVF and fertility preservation. Current New York law requires coverage of infertility services, but specifically excludes coverage of IVF and fertility…
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Melissa’s Law for Fertility Preservation

Author image - Lauren Ataman-Millhouse By: Lauren Ataman-Millhouse -
Categories: Advocate, Blog, Cancer, Fertility Preservation, In the news, Patient Stories
The Oncofertility Consortium was mentioned recently in a feature in Greenwich Magazine, an online magazine from Connecticut. Connecticut was the first state to pass landmark oncofertility legislation, which opens access to fertility treatment for cancer patients. The law is named for Melissa Thompson, a patient advocate…
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July VGR: Advocating for FP Insurance Coverage

Author image - Lauren Ataman-Millhouse By: Lauren Ataman-Millhouse -
Categories: Advocate, Blog, Fertility Preservation, In the news, Oncofertility, Patient Stories, Virtual Grand Rounds
July's VGR presentation is now available online. Joyce Reinecke, JD, Executive Director of the Alliance for Fertility Preservation, presented on advocating for insurance coverage and discussed the recent efforts in many states to mandate coverage for fertility preservation procedures. Connecticut and Rhode Island became the first and…
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RESOURCE ALERT: Introducing C is for Courage – a New Coloring Book Journal for Adults Living With Cancer

Author image - Lauren Ataman-Millhouse By: Lauren Ataman-Millhouse -
Categories: Advocate, Blog, Cancer, Patient Stories, Publication
Last month, author Chloé McFeters released six coloring book journals for adults, including C is for Courage, a coloring book journal for those living with cancer. The book’s journal prompts invite the reader to write about the practical and emotional aspects of the journey with…
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May VGR Now Online

Author image - Lauren Ataman-Millhouse By: Lauren Ataman-Millhouse -
Categories: Blog, Cancer, Fertility Preservation, Oncofertility, Patient Stories, Research, Virtual Grand Rounds
The May VGR, delivered by Dr. Angela Lawson, is now available online. Dr. Lawson's talk Balancing Hope and Loss: Psychological Aspects of Gamete Cryopreservation in Cancer Patients explored the psychological aspects of infertility and oncofertility and she discussed her approach to counseling these patients. There were a number of engaging questions…
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Cancer and Adoption VGR

Author image - Lauren Ataman-Millhouse By: Lauren Ataman-Millhouse -
Categories: Blog, Cancer, Patient Stories, Virtual Grand Rounds
Megan Silianoff, survivor and author of the book "99 Problems but a Baby Ain't One", delivered an inspiring VGR about her experiences with cancer and adoption. During her presentation, she shared her story and how she navigated the adoption process after her cancer diagnosis. This…
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Presentations from the 2015 Conference- Gwendolyn Quinn, PhD

Author image - Lauren Ataman-Millhouse By: Lauren Ataman-Millhouse -
Categories: Blog, Conferences, Patient Stories
Dr. Gwendolgyn Quinn, PhD, Moffit Cancer Center, gave an oustanding talk at the 2015 Oncofertility Consortium Conference. Her talk: Do Ask and Do Tell: The Importance of LGBTQ Status in Reproductive Health visited the contemporary topic of lesbian, gay, bisexual, transgender, queer (LGBTQ) research in…
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Stupid Cancer: Evening Panel Discussion

Author image - Leah Bressler By: Leah Bressler -
Categories: Advocate, Blog, Cancer, children, Conferences, ethics, Fertility Preservation, National Physicians Cooperative, Oncofertility, Patient Stories
Thank you to Matthew Zachary, Founder and CEO of Stupid Cancer, and to the patients and families who shared their journeys with us today. Stupid Cancer is a non-profit organization that utilizes evidence-based programs and services to optimize awareness, outreach and support in young adult cancer survivors. We…
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Dr. Meacham: Sexual Function in Male Cancer Survivors

Author image - Leah Bressler By: Leah Bressler -
Categories: Advocate, Blog, Cancer, children, Conferences, ethics, fertility, National Physicians Cooperative, Patient Stories
After hearing about issues with sexual function in female young adult cancer survivors, Dr. Meacham shared with us the special issues in young adult male cancer survivors. She discussed how sexual function includes both physical and emotional components and has a key role in determining quality…
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Dr. Woodard: Sexual Function in Female Cancer Survivors

Author image - Leah Bressler By: Leah Bressler -
Categories: Advocate, Blog, Cancer, children, Conferences, Education, Fertility Preservation, National Physicians Cooperative, Patient Stories
Dr. Woodard, reproductive endocrinologist and infertility specialist at MD Anderson and Baylor discussed special issues in sexual functioning among female young adult cancer survivors. She reviewed how surgery, chemotherapy and/or radiation therapies can have long-term and late effects such as fistulas, sensory changes or nerve damage. Dr. Woodard paid special attention…
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Pediatric Oncofertility Research Foundation

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Introductions, Oncofertility, Patient Stories
We are delighted to provide our support to the newly developed Pediatric Oncofertility Research Foundation (PORF).  PORF supports research in the field of fertility preservation for children treated for cancer. The primary goal of the foundation is to allow the choice of future fertility to…
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Oncofertility in the news!

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Blog, Cancer, children, Fertility Preservation, In the news, National Physicians Cooperative, Oncofertility, Patient Stories
The Chicago Tribune recently published an article, Kids with Cancer get Futuristic Chance at Saving Fertility, describing the role of ovarian and testicular freezing in saving future fertility for pediatric cancer patients.  The article highlighted patient and parent stories from Ann & Robert H. Lurie Children’s Hospital in…
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Moving Beyond Cancer

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Blog, Cancer, Fertility Preservation, In the news, Oncofertility, Patient Stories
The Oncofertility Consortium was highlighted in the Spring 2015 issue of Northwestern Medicine Magazine in the article “Moving Beyond Cancer“.  In this issue, Holly and Richard Manprisio, and their journey to build a family, are highlighted.  Holly conquered stage 4 Hodgkins lymphoma when she was just 13 and was…
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Adoption and Oncofertility: Another Option for Cancer Survivors

Author image - Lauren Ataman-Millhouse By: Lauren Ataman-Millhouse -
Categories: Blog, Cancer, children, fertility, Fertility Preservation, General, Oncofertility, Patient Stories
A recent feature in Cure magazine discusses adoption as another option for cancer survivors who want to build a family. Each patient is unique. The impact of a given treatment on fertility can vary and so can the time available before starting life saving treatments.…
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Stupid Cancer Chicago Meet-up: June 25th

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Cancer, General, Patient Stories
UPDATE: NEW VENUE INFORMATION BELOW! The Oncofertility Consortium is pleased to spread the word about an upcoming Stupid Cancer Meet-up with founder and CEO (and a wonderful friend of the Oncofertility Consortium), Matthew Zachary.  Mark your calendars for Wednesday, June 25th – read more below! Wednesday…
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