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Tag: Advocate

Stupid Cancer: Evening Panel Discussion

Author image - Leah Bressler By: Leah Bressler -
Categories: Advocate, Blog, Cancer, children, Conferences, ethics, Fertility Preservation, National Physicians Cooperative, Oncofertility, Patient Stories
Tags: 2015 Oncofertility Conference, Advocate, cancer
Thank you to Matthew Zachary, Founder and CEO of Stupid Cancer, and to the patients and families who shared their journeys with us today. Stupid Cancer is a non-profit organization that utilizes evidence-based programs and services to optimize awareness, outreach and support in young adult cancer survivors. We…
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Dr. Hayes-Lattin: Insurance Coverage for Fertility Preservation

Author image - Leah Bressler By: Leah Bressler -
Categories: Advocate, Blog, Cancer, children, Conferences, ethics, Fertility Preservation, General, In the news, National Physicians Cooperative, Oncofertility
Tags: 2015 Oncofertility Conference, Advocate, cancer, Conference, Oncofertility
Dr. Hayes-Lattin gave a stimulating lecture on the status of insurance coverage for fertility preservation and what we can do as healthcare providers, researchers and advocates to allow our patients to receive oncofertility coverage. Up to 60% of cancer survivors are at risk for iatrogenic infertility…
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Dr. Meacham: Sexual Function in Male Cancer Survivors

Author image - Leah Bressler By: Leah Bressler -
Categories: Advocate, Blog, Cancer, children, Conferences, ethics, fertility, National Physicians Cooperative, Patient Stories
Tags: 2015 Oncofertility Conference, Advocate
After hearing about issues with sexual function in female young adult cancer survivors, Dr. Meacham shared with us the special issues in young adult male cancer survivors. She discussed how sexual function includes both physical and emotional components and has a key role in determining quality…
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Dr. Woodard: Sexual Function in Female Cancer Survivors

Author image - Leah Bressler By: Leah Bressler -
Categories: Advocate, Blog, Cancer, children, Conferences, Education, Fertility Preservation, National Physicians Cooperative, Patient Stories
Tags: 2015 Oncofertility Conference, Advocate, Fertility Preservation
Dr. Woodard, reproductive endocrinologist and infertility specialist at MD Anderson and Baylor discussed special issues in sexual functioning among female young adult cancer survivors. She reviewed how surgery, chemotherapy and/or radiation therapies can have long-term and late effects such as fistulas, sensory changes or nerve damage. Dr. Woodard paid special attention…
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Gender Dysphoria Panel

Author image - Leah Bressler By: Leah Bressler -
Categories: Blog, Conferences, ethics, Fertility Preservation, Oncofertility, Research, science
Tags: 2015 Oncofertility Conference, Advocate, Fertility Preservation
          Dr. Garofalo, Dr. Finlayson, Jennifer Leininger and Dr. Lawson brought their respective expertise to generate a stimulating, thought-provoking discussion on fertility preservation in gender dysphoria patients at this year’s Oncofertility Consortium 2015 Conferece .
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Dr. Finlayson: Fertility Preservation in Disorders of Sex Development (DSD)

Author image - Leah Bressler By: Leah Bressler -
Categories: Advocate, Blog, Cancer, children, Conferences, Education, ethics, fertility
Tags: 2015 Oncofertility Conference, Advocate, Fertility Preservation
Dr. Finlayson, pediatric endocrinologist at the multi-disciplinary Gender & Sex Development Program at Lurie Children’s Hospital, spoke to us about fertility preservation options in patients with DSD. She started by explaining that DSD represents a group of medical congenital conditions in which chromosomal, gonadal or…
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Lockart: Assent/Consent of Pediatric Patients

Author image - Leah Bressler By: Leah Bressler -
Categories: Blog, Cancer, children, Conferences, ethics, Fertility Preservation, Oncofertility
Tags: 2015 Oncofertility Conference, Advocate
Barbara Lockart, pediatric NP and coordinator for the fertility preservation program at Ann and Robert H. Lurie Children’s Hospital of Chicago discussed the process of assent and consent in fertility preservation in children. She started off reviewing the history of human rights violations and our obligation…
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Dr. Quinn: LGBTQ- Do Ask, Do Tell

Author image - Leah Bressler By: Leah Bressler -
Categories: Blog, Conferences, Education, ethics, fertility, Fertility Preservation
Tags: 2015 Oncofertility Conference, Advocate
Dr. Quinn, Professor of Oncologic Sciences at the Moffitt Cancer Center, educated 2015 Oncofertility Conference attendees on the importance of discussing fertility preservation options in LGBTQ (lesbian, gay, bisexual, transsexual/transgender and queer/questioning) patients. She called attention to the need for improved communication by reviewing that LGBTQ communities experience discrimination and…
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Streaming live from the 2015 Oncofertility Conferece

Author image - Leah Bressler By: Leah Bressler -
Categories: Blog, Conferences, Fertility Preservation, General, Oncofertility
Tags: 2015 Oncofertility Conference, Advocate
Today, we’re excited to introduce a new blog series streaming live from the 9th annual Oncofertility Conference, Critical Conversations in Oncofertility: Pediatrics and Beyond, which focuses on pediatric oncofertility and is attended by physicians and scientists from all over the globe. First a quick introduction from…
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Successful Soulcycle Event

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, National Physicians Cooperative, Oncofertility
Tags: Advocate, National Physicians Cooperative, Oncofertility
We’re happy to share that National Physicians Cooperative member, Reproductive Medicine Associates of New York, hosted a successful fundraising event this past Sunday at Soulcycle in Manhattan, New York.  This philanthropic class was sold out and money was raised for Susan G. Komen Foundation in…
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Pediatric Oncofertility Research Foundation

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Introductions, Oncofertility, Patient Stories
Tags: Advocate, Introduction, Oncofertility, Personal stories
We are delighted to provide our support to the newly developed Pediatric Oncofertility Research Foundation (PORF).  PORF supports research in the field of fertility preservation for children treated for cancer. The primary goal of the foundation is to allow the choice of future fertility to…
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Stupid Cancer Chicago Meet-up: June 25th

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Cancer, General, Patient Stories
Tags: Advocate, AYA, cancer, Personal stories
UPDATE: NEW VENUE INFORMATION BELOW! The Oncofertility Consortium is pleased to spread the word about an upcoming Stupid Cancer Meet-up with founder and CEO (and a wonderful friend of the Oncofertility Consortium), Matthew Zachary.  Mark your calendars for Wednesday, June 25th – read more below! Wednesday…
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Insurance Coverage for Fertility Preservation

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Cancer, Communication, fertility, Fertility Preservation, General, Oncofertility
Tags: Advocate, cancer, Fertility Preservation, insurance, Oncofertility, publication
Chapter 14 of Oncofertility Communication: Sharing Information and Building Relationships across Disciplines addresses an extremely important issue in healthcare, insurance coverage.  The authors, Dr. Laxmi Kondapalli and Alice Crisci, wrote Incorporating Insurance Education into the Fertility Preservation Process to outline strategies that may facilitate access…
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AYA Twitter Chat TODAY 12:30pm CST (#YACancer)

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Cancer, Fertility Preservation, General, Oncofertility, Patient Stories
Tags: Advocate, AYA, cancer, Fertility Preservation, Oncofertility, Personal stories, Robert H. Lurie Comprehensive Cancer Center
Recently, Mashable featured Jenna Benn in a wonderful article: Wedding, Career, Chemo: When Cancer Derails the Millennial Dream.  Jenna Benn is a patient of the Robert H. Lurie Comprehensive Cancer Center at and a wonderful friend and supporter of the Oncofertility Consortium. Due to the…
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2014 World Cancer Day

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Cancer, Education, Fertility Preservation, General, In the news, Research, science
Tags: Advocate, cancer, education, ethics, Fertility Preservation, quality of life
If you’re not already aware, today is World Cancer Day.  World Cancer Day was founded by the Union for International Cancer Control (UICC) to support the goals of the World Cancer Declaration which calls upon government leaders and health policy-makers to significantly reduce the global…
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Communicating Across Diverse and Differently Literate Audiences

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Cancer, Education, Fertility Preservation, Oncofertility
Tags: Advocate, cancer, education, Fertility Preservation, Oncofertility, publication
We can all remember a time when we have received medical information from our doctor and have walked away with little or no comprehension of what was discussed.  The second chapter in Oncofertility Communication: Sharing Information and Building Relationships Across Disciplines is entitled Communicating Across…
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The Stupid Cancer Show: Perspectives on Life after Cancer

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Cancer, Education, Fertility Preservation, Oncofertility
Tags: Advocate, cancer, fertility, Fertility Preservation, Oncofertility, ovarian tissue cryopreservation, Personal stories, Robert H. Lurie Comprehensive Cancer Center, Stupid Cancer
Here at the Oncofertility Consortium, we’re huge fans – both personally and professionally – of Matthew Zachary, the force behind Stupid Cancer; the nation’s largest support community of young adult survivors of cancer.  Created in 2004 (first as Steps for Living, then transitioning into I’m Too…
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Support The Family Act of 2013!

Author image - Brigid Martz Smith By: Brigid Martz Smith -
Categories: Advocate, Blog, Cancer, fertility, Fertility Preservation
Tags: Advocate, Fertility Preservation, infertility, insurance
Imagine that you are diagnosed with cancer at 24.  On top of processing the enormity of your diagnosis at such a young age, you’re shuttled from one appointment to the next, coordinating your treatment plan in the quickest timeframe possible.  Today, treatment discussions are more…
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Breast Cancer Genes Verdict a Triumph for Women

By: Oncofertility Admin -
Categories: Blog, Cancer, fertility, Fertility Preservation, Oncofertility
Tags: Advocate, BRCA1, cancer, Fertility Preservation, legal, women's health research institute
Below is a guest post by Megan Castle, Program Coordinator for the Women’s Health Research Institute at Northwestern University.  By Megan Castle Geneticists, researchers, and patients joined in celebration over last [month’s] unanimous Supreme Court ruling involving the BRCA1 and BRCA2 genes, colloquially referred to…
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California Bill AB 912, Mandated Fertility Preservation, Moves On to the Senate

By: Oncofertility Admin -
Categories: Blog, Cancer, Fertility Preservation, General, Oncofertility
Tags: Advocate, CA Bill AB 912, cancer, Fertility Preservation, insurance
On Wednesday, May 29th, the California Assembly passed Bill AB 912. On July 10th, it will be addressed by the California Senate Health Committee. For those of you who are unfamiliar with California Bill AB 912, it is a bill that would require a health…
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