On behalf of the Alliance for Fertility Preservation, we wanted to give you a summary of the great strides that we made this year advocating for coverage in Texas!
RESOLVE New England is actively involved in advocating for insurance legislation in New Hampshire, in partnership with patients, advocates, and providers. The bill, SB 279, would provide group insurance coverage for the diagnosis of infertility, fertility treatment and fertility preservation in New Hampshire.
Kristin Smith, the Oncofertility Consortium’s esteemed patient navigator, was recently featured on the final episode of the This Is Infertility podcast to discuss her role as a patient navigator.
OPEN Member Val Peddie, from the Royal College of Nursing in Aberdeen was recently highlighted in Royal College of Nursing electronic magazine bulletin (see pages 10-11) to discuss fertility preservation and patient experience in Aberdeen. The article highlights Val and all of the work she…
On August 27, 2018, Illinois Governor Bruce Rauner will sign in to law HB2617, which will ensure insurance coverage for oncofertility and fertility preservation patients. Illinois will join four other states that have passed similar legislation. This is a huge milestone for the field and on…
Below is an exiciting announcement from our partners at the Alliance for Fertility Preservation. New York has become the latest state to endorse insurance coverage for IVF and fertility preservation. Current New York law requires coverage of infertility services, but specifically excludes coverage of IVF and fertility…
The Oncofertility Consortium was mentioned recently in a feature in Greenwich Magazine, an online magazine from Connecticut. Connecticut was the first state to pass landmark oncofertility legislation, which opens access to fertility treatment for cancer patients. The law is named for Melissa Thompson, a patient advocate…
July's VGR presentation is now available online. Joyce Reinecke, JD, Executive Director of the Alliance for Fertility Preservation, presented on advocating for insurance coverage and discussed the recent efforts in many states to mandate coverage for fertility preservation procedures. Connecticut and Rhode Island became the first and…
Last month, author Chloé McFeters released six coloring book journals for adults, including C is for Courage, a coloring book journal for those living with cancer. The book’s journal prompts invite the reader to write about the practical and emotional aspects of the journey with…
On June 20th, Connecticut passed bill HB 7124 which provides coverage of cryopreservation of eggs, sperm, or embryo for all patients facing a threat to fertility. More specifically, the new law amends the definition of infertility and is extended to include those whom fertility services are…
Wednesday, May 10th was World Lupus Day and the Oncofertility Consortium would like to take the time to highlight the fertility needs of young women with lupus and the Northwestern treatment team that manages the disease and the fertility/endocrine needs of our patients. Dr.…
LIVESTRONG has launched a dynamic online training for health professionals focused on issues related to cancer treatment and fertility. Even though more than 150,000 people diagnosed with cancer during their reproductive years, studies have found that health care professionals are still not informing nor referring…
Oncofertility colleagues, Drs. Richard Anderson and Melanie Davies from the UK recently published an editorial in The BMJ encouraging specialists across the UK to standardize fertility preservation interventions since awareness about fertility preservation remains relatively low. Despite national guidelines, obstacles still remain in terms of…
Dr. Antoinette Anazodo, Director of Adolescent and Young Adult Cancer at the Kids Cancer Centre at the Sydney Children's Hospital, and member of the Oncofertility Global Partners Network, is asking for support for Oncofertility Federal government changes in Australia. Below is a message from Dr.…
True North Treks is a non-profit organization dedicated to enriching the lives of adolescent and young adult cancer survivors during their transition or “re-entry” from a cancer diagnosis and treatment to survivorship. TNT is offering exciting opportunities for caregivers and survivors in 2016! Between the end of May and mid-September True…
Northwestern Medicine and the Robert H. Lurie Comprehensive Cancer Center are hosting a special AYA-edition of Cancer Connections on Saturday, April 2nd from 9:00am – 12:30pm at Northwestern Memorial Hospital. This program is designed for young adults diagnosed with cancer between the ages of 15-39 but…
We are pleased to announce that our friends at Oncofertility University have published their next training course, Male Oncofertility: Advocating for Your Patient's Fertile Future which follows their inaugural course, Female Oncofertlity: Advocating for Your Patient's Fertile Future. These courses train oncology professionals on the complex…
Thank you to Matthew Zachary, Founder and CEO of Stupid Cancer, and to the patients and families who shared their journeys with us today. Stupid Cancer is a non-profit organization that utilizes evidence-based programs and services to optimize awareness, outreach and support in young adult cancer survivors. We…
We’re excited to co-host an event this evening with Critical Mass, a community-powered advocacy organization empowered to transform the care and treatment of young adults with cancer. Together we’re hosting a meet-and-greet to exchange good conversation and ideas. Look forward to seeing you at 303 E Superior Street…
Dr. Hayes-Lattin gave a stimulating lecture on the status of insurance coverage for fertility preservation and what we can do as healthcare providers, researchers and advocates to allow our patients to receive oncofertility coverage. Up to 60% of cancer survivors are at risk for iatrogenic infertility…
After hearing about issues with sexual function in female young adult cancer survivors, Dr. Meacham shared with us the special issues in young adult male cancer survivors. She discussed how sexual function includes both physical and emotional components and has a key role in determining quality…
Dr. Woodard, reproductive endocrinologist and infertility specialist at MD Anderson and Baylor discussed special issues in sexual functioning among female young adult cancer survivors. She reviewed how surgery, chemotherapy and/or radiation therapies can have long-term and late effects such as fistulas, sensory changes or nerve damage. Dr. Woodard paid special attention…
Dr. Finlayson, pediatric endocrinologist at the multi-disciplinary Gender & Sex Development Program at Lurie Children’s Hospital, spoke to us about fertility preservation options in patients with DSD. She started by explaining that DSD represents a group of medical congenital conditions in which chromosomal, gonadal or…
Dr. Campo-Engelstein, PhD in bioethics at Albany Medical College, gave a compelling review of the key ethical considerations in ovarian stimulation in adolescent cancer patients. She led attendees through a range of topics and emphasized how the biologically-determined differences in treatment by sex have real ethical ramifications for…