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Tag: Advocate

California Bill AB 912: Mandated Fertility Preservation Coverage

By: Oncofertility Admin -
Categories: Blog, Cancer, Fertility Preservation, Oncofertility
Wouldn’t it be great if insurance companies were required to provide coverage for medically necessary expenses for standard fertility preservation services when a medical treatment may directly or indirectly cause infertility to an enrollee or insured? California Assemblywoman Sharon Quirk-Silva, thinks so too and recently…
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Introducing Cancer Survivorship Training for Healthcare Professionals

By: Oncofertility Admin -
Categories: Blog, Cancer, Education, Fertility Preservation, Oncofertility, Research
There are an estimated 13 million cancer survivors living in the US today, with projected growth to 18 million by 2020. As a result, many healthcare groups and cancer centers are not equipped to address their growing survivor populations. Stemming from this need for quality…
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Our Voice, Our Narrative, Our Twists on Cancer

By: Oncofertility Admin -
Categories: Blog, Cancer, fertility, Fertility Preservation, Oncofertility
Below is a guest post by Oncofertility Consortium favorite and cancer survivor extraordinaire, Jenna Benn. Jenna is a young adult Gray Zone Lymphoma survivor, who preserved her fertility prior to beginning her cancer treatment in 2011. In the excerpt below, she writes about her experience as a cancer survivor, and shares…
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Movember & Sons: Raising Awareness About Prostate & Testicular Cancer

By: Oncofertility Admin -
Categories: Blog, Education, Fertility Preservation, General, Oncofertility
The month of November kicks off the sixth annual Movember fundraising campaign to raise vital awareness and funds for men’s health issues, specifically prostate and testicular cancer initiatives.  Every November, men are encouraged to grow out their moustaches for the entire month in support of…
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Building a Successful Fertility Preservation Program

By: Oncofertility Admin -
Categories: Blog, Cancer, Education, Fertility Preservation, General, Oncofertility
More and more healthcare organizations, hospitals, and clinics are interested in learning about fertility preservation and how exactly an oncofertility program is developed. The Oncofertility Consortium holds a 1-day course entitled, Clinic 101, to teach health care providers the necessary steps involved in developing their own…
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APHON Releases Fertility Preservation Position Statement

By: Oncofertility Admin -
Categories: Blog, Cancer, Fertility Preservation, General, National Physicians Cooperative, Oncofertility
Yesterday we posted a blog about the 36th annual APHON (Association of Pediatric Hematology/Oncology Nurses) Conference being held right now in Pittsburgh, PA.  It’s an exciting time for us because not only do we have a member of the Oncofertility Consortium presenting on fertility perseveration…
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The Role of Fertility Preservation Patient Navigators in Oncofertility Management

By: Oncofertility Admin -
Categories: Advocate, Blog, Cancer, Fertility Preservation, Oncofertility
As you may have heard us mention a time or two before, the 3rd book in the oncofertility series, Oncofertility Medical Practice: Clinical Issues and Implementation, was just released on Amazon.com and is available for purchase. Besides just letting our readers know that important piece…
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September 30th: Lynn Sage Breast Cancer Town Hall Meeting

By: Oncofertility Admin -
Categories: Advocate, Blog, Cancer, General
The Northwestern Community (university, hospital, faculty foundation, etc.) is extremely comprehensive, and offers so much in the realm of cancer care. We like to think that we’re a one stop shop for anyone dealing with a cancer diagnosis – taking care of patients’ physical, mental,…
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CNN Health Focuses on Imerman Angels and Cancer Advocacy

By: Oncofertility Admin -
Categories: Advocate, Blog, Cancer
Recently, one of our friends and cancer advocates, Jonny Imerman, was featured on CNN Health, in an article entitled “Pairing ‘Angels’ with Cancer Patients,” showcasing the organization he began 10 years ago, Imerman Angels. Imerman Angels is an organization founded in 2003 that carefully matches and…
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“Life Interrupted,” Shares the Unique Challenges of a Young Adult with Cancer

By: Oncofertility Admin -
Categories: Advocate, Blog, Cancer, Fertility Preservation, Oncofertility
Suleika Jaouad is a 24-year-old writer from Saratoga Springs, N.Y. Her column, “Life, Interrupted,” appears weekly in the New York Times. Suleika chronicles her experience as a young adult with cancer and the unique challenges she faces such as infertility, psychosocial issues, and survivorship. I…
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Navigating Cancer Clinical Trials Laws

By: Oncofertility Admin -
Categories: Advocate, Blog, Cancer
We now bring to you a guest blog from the cancer advocacy group Navigating Cancer Survivorship, which provides education and resources to health care professionals, survivors, and caregivers regarding the continuum of cancer survivorship. __________ As previous blog posts have indicated, there are several laws…
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The New Pro-Choice Movement: Fertility Preservation

By: Oncofertility Admin -
Categories: Advocate, Blog, Cancer, fertility, General
Fertile Action founder and fertility preservation patient advocate, Alice Crisci, shares her thoughts on the challenges patients face when navigating insurance coverage or lack there of for oncofertility procedures. _______________________________________________________ By Alice Crisci Every day, I struggle with the notion that most Americans diagnosed with cancer…
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The National Cancer Institute Focuses on Oncofertility

By: Oncofertility Admin -
Categories: Blog, Cancer, Fertility Preservation, Oncofertility
About 70,000 adolescents and young adults (ages 15-39) are diagnosed with cancer each year in the United States. During cancer treatment, adolescents and young adults (AYA) may focus all of their energy on getting through treatment. Some may not have spent much time talking or…
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Cancer Connections: Saturday, July 21st in Chicago

By: Oncofertility Admin -
Categories: Blog, Cancer, General
Cancer Connections is an event held three times a year for individuals affected by a cancer diagnosis, to learn about services, meet advocacy groups and get the tools needed to manage the disease. In less than 2 weeks, Cancer Connections is holding its second session,…
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True North Treks Supports Young Cancer Survivors in Paddleboarding Classic

By: Oncofertility Admin -
Categories: Advocate, Blog, Cancer, fertility, Oncofertility
The adolescent and young adult (AYA) cancer survivor network is  slowly starting to build steam as more and more people begin to recognize the special needs of this demographic. AYA’s not only face a cancer diagnosis at a young age, but as a result, they…
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Teal Diva Shares Her Story of Cancer, Fertility, and Resilience

By: Oncofertility Admin -
Categories: Advocate, Blog, Cancer, fertility, Fertility Preservation, Oncofertility
As part of our guest blog series, the Oncofertility Consortium would like to introduce our readers to Shannon Routh, and her organization for young survivors of ovarian and gynecologic cancers, Teal Diva, founded in 2009. Below is a post she wrote about her experience with…
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Oncofertility joins the AAMC Steering Committee on Women in Medicine and Science

By: Oncofertility Admin -
Categories: Advocate, Blog, Education, In the news, Research
Congratulations are in order for Kate Waimey Timmerman, PhD, who was just named by the American Association of Medical Colleges (AAMC) to the Women in Medicine and Science Steering Committee (GWIMS).  This appointment is an important step for Dr. Timmerman as well as the Oncofertility…
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National Young Adult Cancer Awareness Week

By: Oncofertility Admin -
Categories: Blog, Cancer, fertility
This week is the 10th Annual National Young Adult Cancer Awareness Week, beginning April 2nd and ending on April 8th. In April 2003, National Young Adult Cancer Awareness Week was launched, and organizations and clinical institutions throughout North America began partnering to raise awareness about…
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Get EmPOWERed: Life After Cancer for Adolescent & Young Adult Survivors

By: Oncofertility Admin -
Categories: Advocate, Blog, Cancer, Education, Fertility Preservation, Oncofertility
What does empowerment mean to you? Does it mean giving someone the authority or power to do something… because that’s what you’ll find if you look it up?  The word is not a new one – it originated around the 17th century and the meaning…
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